Medical passport Overige pagina's Always carry a medical passport or document stating that you have HHT. HHT is a relatively rare disease, which is not easily recognized.
Holiday or traveling Overige pagina's Taking a holiday is rarely a problem for HHT patients, but very dry and hot or very cold climates should be avoided.
Insurance Overige pagina's Dutch insurance companies have agreed (moratorium) that results of previous DNA tests do not have to be revealed when a patient applies for an insurance.